Wed. 5/28 - update

Thank you God! Today was a very positive day. Caed woke up in a good mood (always a great sign). I began feeding him the Carnation Instant Breakfast (10 cc), and then every hour after I would alternate between that and a tsp. of yogurt. The norm is for it to be down for maybe 30 minutes and then he usually throws it up. I did this from 9:00 - 1:00 (5 feedings). Never once got sick! A huge step!! He took a short nap, and during that he threw up a couple of times (but very small). Then we started back on the eating every hour...this time I gave him a choice of a few more things. He still wanted to stick with the yogurt. I'm hoping he will learn that he HAS to eat "something" every hour and begin to ask for different things (instead of us force feeding). He got sick a few more times tonight, but again, was very little. He went outside for awhile and played with (my cousin) Marnie's kids. He hasn't talked very much today, but that's ok. I'll take the silence over the screaming. (can wear on your nerves!) Another praise is that his new TPN bags arrived today and they are now 1/2 the dosage and cut down to 12 hours!! That means he will only be "hooked up" mainly at night. (9:00 pm - 9:00 am) That will make it much easier for him to get up and be active or us go somewhere. His backpack can be very heavy and not much fun to carry all morning. However...I know this is probably a trial basis according to our GI dr. He wants to see Caed in several days to see how he is doing with the new amount/time.
I pray he can do well and we can go to his appt. and SURPRISE him at how well Caed is eating by mouth! We also got a call from the "Pediatric Behaviorist" today and we have our first appt. Mon. afternoon.

Todd and Reagan got to Celina ok. We were able to talk to each other via video phone on the computer. First time we've been able to use it. I had Todd walk around the house so Caed and I could see everything. I even made him open up the refrigerator! (Brad, if you're missing your soy sauce and refried beans...we've got them!) Caed's face lit up when they went to his room. I was a little worried at how he would react to seeing everything. It's amazing though. I can't begin to explain the feeling of seeing your home on the computer. A place of such familiarity, and yet so foreign. We've only been away 3 months. I can't imagine men and women in the service who are gone sometimes a year or more! I definitely have new empathy for them now. I am very thankful for the video phone. It helps us feel like we're home, and also gave me a picture of what it'll be like when Caed and I can walk through the door too. Tomorrow Reagan gets to go horseback riding with a group of fellow homeschoolers. She is looking so forward to that! Thank you Christy for watching her for us!

My parents and I have also had a good day. It's amazing how when Caed has good days...so do we! ha! My mom and I began going through ALL the bags and boxes from the hospital. I don't think even a picture can do it justice. Those are just Caed's toys. We are trying to get somewhat organized so the kids can better see what all there is to play with. Pretty difficult when everything's stuffed in bags. Thank you all again for thinking of them and sending such fun stuff! It helped in the hospital to take his mind of everything, and now we pray the books, toys, etc...will help again bring some normalcy to his life. I think of each of you when I look at it ALL! We are overly blessed to have such caring, supportive family and friends like you!



Christmas in May?