Today was a very good day! There was less drainage from his G-tube, less throwing up, and just overall in a better mood. Our Home Health nurse came this morning, and that was probably the worst part of his day. She had to change his broviac dressing, so there was a lot of anxiety and fear! But, he did great...was very brave. I think it will only get better each time she comes. He will start to know what to expect more. When he woke up this morning the first thing he wanted was a donut! (but specifically a powdered one...which we didn't have) Then tonight he ate 3 bites of pizza (thanks Jack & Tronda!). We have also begun giving him some Carnation Instant Breakfast (drink). The drs. are telling us to really push that if we can. (it's basically the same type stuff he was getting through his J-tube a few weeks ago) So far over the last 2 days he has only drank about 5 oz. altogether. But, hopefully he can increase that amount slowly. Our main concern there is just for him to keep it down. Some of it has drained out the G-tube and he also threw up some, but again, we pray that a little has gone on through. After his nap this afternoon, he felt like going outside. Something we are desperately trying to encourage. He did good. There are times he will cry (either in pain or just tired), but we try to help him "keep going" and not allow him to always run back to the couch (his security). Again, we were very encouraged by today. Still a long way to go...but hopefully we're gradually making some progress!!!
Caleb - 3 mos. today!
Taking a cruise down the block (look familiar Lesli?)
Daily fish feeding
Fun again with the water gun
2 comments:
How wonderful to see the pictures of Caed up doing just normal things. And, how special to see him with Reagan and Caleb.
Our God is so good - I know you are thankful for this time to be together away from the hospital - for this time of renewal.
Please know that there are soooo many people praying for Caed and for your whole family. Thank you for sharing so openly this incredibly difficult journey and your sweet dependence on God. It has been an encouragement to all who read the updates, but also a call to us all to place ourselves completely in His care and trust His timing.
Take joy in the good days.
We are out of town right now in Abilene. My dad offered to show Sam "our" favorite table here in this hotel. I did not get it at first, but I remembered the trip we took when you and I slept until 11 and missed the "free" breakfast. I think it was a playoff game or something! Anyway, they brought us the check and we were at the champaign brunch and it was $15 bucks a pop! Coach Huseman had a hayday with that one! Even called us in as if we were in trouble! We were still clueless, as we were most of the time! I loved the pics of Caed and the sculptured bushes! People in my neighborhood now call me Edward Scissorhands thanks to those bushes. It is still my job to cut bushes at my house! My parents are here with us, so that would explain where they were, if you knocked.
I am praying that all is well. Caed looks so wonderful, so I know his treatment is working whatever you are doing. I pray it just continues to get better! Love you all and see you soon!
Lesli
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