Overall today wasn't a bad day. He was still in pain several times and did throw up some, but overall he felt ok. We had some VERY special visitors come see him. More Texas Tech football players. (thank you Angela for setting this up!) These guys came dressed in their jerseys and had some cool gifts for him. He was excited. He just kept staring a hole through one of them. They were such nice guys and we appreciate so much them taking time to come see him. It'll be something he remembers always. (us too!) Definitely one of the highlights from our stay here. He is having to be back on his TPN for 20 hrs. at a time now, since we've stopped the tube feedings. Kind of a bummer because it means we can't have a very long "time-away." This afternoon, once he got unhooked from everything, we decided to go to Grammy's house (Todd's mom). She literally lives right down the street from the hospital, and since we didn't have much time today (2 hrs.), it was perfect. Reagan and Caleb were also over there, so we got to see them too. He did well. He played some baseball out in the backyard w/ Daddy and Reagan, rode a bicycle, and watched everyone play some Wii. He even walked over to the fridge and wanted some juice and pretzels. Hasn't eaten anything in over a week. Of course, since his G-tube is draining continually, it doesn't matter too much what he takes in. It just comes out anyway. However, the dr. said some of it does go on through. We had a long talk with the surgeon tonight. One thing we are going to try is having a 24 hr. pass away. We definitely see where he does more when he's away from the hospital. How we PRAY that this can help things start working better. She has some plans for the our next step. Hopefully we'll see progress when we start those.
My dad made a comment last night and Todd and I totally agree: We can be in the deepest, darkest valley (emotionally), and then immediately be on the highest mountain top with just one smile from Caed!! Oh, how true it is. Seeing "old Caed" makes you forget just for a moment our current situation. We thank GOD for giving us those little smiles and at just the times we need them most. Thank you Lord, that You do not give us more than we can handle.
Look upon my suffering and deliver me, for I have not forgotten Your law. Defend my cause and redeem me; preserve my life according to Your promise. (Psalm 119:153-154)
Antonio Huffman, (DB) Trenton Nickerson #25,
(DB) Jarell Routt #36, (LB) Victor Hunter #52
Uncle "Otar" and Uncle Brad...we know you
are SO jealous and wish you could have been
here as well!
signing Caed's t-shirt
riding a bike at Grammy's house
playing baseball w/ Daddy
1 comment:
It is so cool to be visted by all these people isnt it caed!!! i really think you have so many fans and people praying for you. i love you and want you to come home very soon!!! addie
P.S i was a party did not get to get on but i prayed i promise.
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