Tues. 5/6 - update

Cast all your anxiety on Him because He cares for you. (1 Peter 5:7)


Well, we survived our first 24 hrs. home! Caed did great through the night. We got him a little toddler bed (only because it's lower to the ground and will be easier for him to get in and out of). He never woke up in pain, etc... Only "slapped" the bed (his way of getting our attention) a couple of times because he couldn't find his water. But, never made a peep. This morning was a different story. When we woke up, I guess he was thinking that since he is "home," he wouldn't be hooked up to anything. (usually wasn't when we would come out on our passes) He was VERY upset because we were having to follow him around with his TPN. He basically stayed on the couch most of the morning. Then, he went to his bed and took a nap. After he woke up, it would be time to get "unhooked." (3:00 - 8:00 pm) He wanted to go straight back to the couch, but we wouldn't let him. We encouraged him to come outside with everyone else. Finally, he came and had a little fun. The golf course was under water, so he loved be able to splash around. We also went for a walk in the wagon. Occasionally he would cry out in pain (?) and we would drain his G-tube to give some relief. He did throw up a few times, but the draining seems to help that. So, today was pretty typical of the last week. However, instead of it all happening in a hospital room, he was here at "home." I know that's got to make a difference. Dr. G's office called early this morning to see how he did overnight. We also survived all the "nursing" duties. It was a little nerve-racking, but I think the more I do it, the easier and more confident I will feel. Overall, we thank God for today! Todd keeps reminding me it's only the 1st day. We know we are taking baby steps, but steps none the less. Please continue to pray for his little body!! Also, for those of us here taking care of him. It can get very stressful in a hurry...with him crying, Caleb crying, Reagan needing something (also continuing her schooling), etc... Pray for my patience. God is definitely trying to teach me in this area. Megan and Xan are leaving tomorrow. They have been here 8 weeks!! We cannot begin to express our love and gratitude for what they have done for us! We TRULY could not have made it without her!! Thank you Megan and Stan for loving us so much that you would sacrifice your "normal" life and turn it upside down. We will never forget what you have done for us!! With that being said, that brings up another prayer request. We now have one less set of hands. Pray that my mom and I can handle it all (throughout the day).

As I am writing, I can hear in the distance the faint sound of a West Texas spring thunderstorm. I am reminded of what an awesome, powerful God we serve. This evening has been filled with strong winds, hail, heavy rains, lightning, and thunder (& a brief power outage!) Now, it is calm and the rains have diminished to a light sprinkle. I am very confident that all those living in this area are SO grateful for tonight! Although they may not have liked the "storm, " it still brought MUCH NEEDED rain. We are living in a "major storm" right now. The lightning has stung and the hail has beat us down, but oh!...we are so grateful for the "reign." Thank you God for reigning down on us!!!! We desperately need you! Thank you that you promise calm after the storm.

Then they cried out to the LORD in their trouble, and he brought them out of their distress. He stilled the storm to a whisper... (Psalm 107:28-29)

The little bed we got for Caed to sleep in


Thank you Celina Jr. High for the bear and
banner!! He has hung on to it all day.


Playing a little water golf


Playing water golf and splashing his sister...who
can ask for more fun?


Going for a walk around the block
(can you pick out the child who now hides
when the camera comes out?)