Our day began again at the hospital. They drew labs, and Caed's CO2 level was up to 20! (normal is 24). They said yesterday after we left the hospital, his level had only gone up to 12. But, after being on a full night of fluids, it is now much better. Caed woke up like normal this morning....no problems.
After we left the hospital, we took the kids to the Omaha Zoo. We had heard so many good things about this zoo. It's all true! It was definitely the best one Todd or I had either been to. Amazing! You almost need 2 days to really get through it all. There were a few exhibits we didn't get to. The kids loved it! We rented a little wagon for Caed to ride in when he got tired. His backpack is SO heavy now! (with 2 bags + 2 pumps!) Hopefully that will begin lessening.
Reagan and Caed had a full, fun day, but were exhausted when we left. Caed slept about an hour when we got back.
Tomorrow and Fri. we go back to the hospital for more labs. I talked quite a bit with our nurse coordinator this afternoon. She said they are wanting to decrease his fluid (IV) intake to 800 ml/14 hrs. We are very glad to hear that. Should give him about a 10 hr. window to not be hooked up to that pump. (at least it will lighten his load a bit). We will increase his G-feeds by 5ml each day. (2 in the am, and then 3 in the pm) Right now he is at 50cc, and they are still continuous. (so he now has the backpack ALL the time, even while sleeping....only it sits by his bedside at night). Caed's scope has been scheduled for Tues. at 1:30. She said they were not able to get him in on Fri. like they originally hoped.
Overall, Caed had a much better day. We could definitely tell a difference with his energy level. We will be in contact with the drs. each day. They want to get him "stabilized" before taking more action. (primarily the CO2 level)
Not sure what we have planned for tomorrow other than dr. stuff. Thanks for your prayers for us today. We had a fun one! It was sure good for our family.
In the Desert Dome
Walking the bridge in the rainforest
(this was the coolest!!!!)
Caed found him a friend in the aquarium
Another turtle friend
7 comments:
that boy and his turtles! loved the animal pictures! sounds like ya'll had a blast! will be praying for more answers, more lab work, etc.
hugs and kisses
love you all,
Tina
PRAISE GOD!!! That is such wonderful news! Its great you all made it to the zoo. You can tell the kids definately had a fun time.
Dear Heavenly Father,
We thank and praise you today. Thank you that Caed was feeling better and doing better today. I pray that he will continue to improve. Thank you for the DRs and the hospital team. I lift this family and the whole hospital team to you. We thank you again that caed is improving.
We love you and praise you.
AMEN
God Bless and hugs,
Patti from Lusby, MD
The zoo looks AWESOME! So happy you guys got to go! Glad to hear you think the IV fluids are making a difference!!
Hi Todd, Lori, Reagan and Caed,
Sounds like today was a better day for all of you. So grateful to hear that Caed was able to wake up on his own and felt better and had more energy today. Do the doctors know for sure what is causing the "sleep" problem. Hopefully, he want have to be on the fluid pump for long, except for maybe at night. Sounds like a great "zoo day". The animals are so unique and beautiful. Sorry that they had to put the scope off until Tuesday, but that will give Caed more time to get his CO2levels up to par. How is the weather there. It was cool and very cloudy again today with more rain coming in for the next 4-5 days. Hope y'all can find some fun things to do over the next few days while Reagan and Todd are still there. Have you been able to see Tana and Kensley yet? I miss you all. My prayers and love--Mom
TurtleMan returns!!!!
How awesome is our God!! What a blessing He has given you to affirm that you are in the right place...so glad the energy/sleeping problem is better. How wonderful it is to be able to look back over these months and see God's hand guiding and protecting you. What encouragement it is to us all to know that God has provided such good care for Caed step by step and is now getting him ready for the next step.
So glad the kids (big and little) had a good time at the zoo. I know you were very tired, but thank you for updating us.
I'm so thankful that y'all had a wonderful day at the zoo. Thank You, Lord! Continuing to pray for all the medical stuff and for all the decisions that y'all have to make. God will show you His way. He is working!
Showers of His greatest blessings on each of you.
In His love,
Carolyn O'Cain
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