Thursday, September 11, 2008

Thur. 9/11 - update

Caed's CO2 level was up to 23 today! We're gradually getting there. We will go back in for labs again in the morning. (then, he'll have a break for 2 days) He had another good day as far as the "sleeping issue" is concerned. He seems back to "normal" with that part at least. The IV fluids sure seem to be helping out. We also have had to add Sodium Bicarbonate to his G-feeds 3x/daily.

We ran a few errands today (found that Target!), and then we decided since it was raining to let the kids play at the hotel pool. Simple enough, right? Well, for us (and especially Caed) this was a VERY BIG day! Caed has not been able to get in a pool ever since this happened 7 mos. ago. He cannot get his central line wet. HOWEVER.....this pool was absolutely perfect for Caed! It had a really shallow end, and he was able to play, wade, splash.....just the normal things a small child would do in water.

Tana.....you talked in your blog about what a big moment it was for you to just be able to buy Kensley a pair of baby shoes. Well, we kinda had a moment like that ourselves today. To everyone else around at the pool all they saw was a little boy playing in the water. Not to us! To have seen the look on Caed's face when I pulled his swimsuit out of the suitcase was priceless. You see, all summer he has had to sit and watch Reagan and all the other kids swim and play in the pool. (at least a couple of times every week) You would have thought it was Christmas for him today. He was elated! Just simply wearing a swimsuit and being able to splash was a big moment for Caed. Please look beyond the simple pictures of a little boy in a pool. Today was a huge day for him! Thank you God for reminding us of the simple things (like Tana referred to with Kensley........www.faithfulandfree.blogspot.com) Thank you for allowing Caed to have fun and do something as simple as getting wet. In this little boy's mind, he was really swimming today!!!

After the big swim, we were invited to Cordell and Carol's house (20 min. away) for supper. This is a couple we just met on Monday. They have truly taken us under their wing and blessed us tremendously!! Caed and Daddy played a few games of ping-pong, and Reagan enjoyed the food! (she kept eating and eating) We are looking forward to more good times with our "new" friends. Thank you both. You are such wonderful hosts, and we enjoyed our evening out (not to mention a delicious home-cooked meal)!! We thank God for putting you into our lives during this time.

Tomorrow will include heading back to hospital for labs again. Thank you all for your continued prayers!



Caed's 1st time in the pool (in a year!)






Feeding the dolphins

3 comments:

Anonymous said...

Like I said last night, PRAISE GOD! The Lord is absolutely wonderful. I am so glad to hear the Caed had a good day. it sounds as if the CO2 levels was the answer to his sleeping problems. God sends people into our lives all the time but we just need to take a minute and thank him for those wonderful people and appreciate what they do for us. It sounds as if you have done just that. Thank you for sharing your day with all of us. You take care.
God bless and hugs,
Patti from Lusby, MD

Anonymous said...

Hey....So excited to see the look on Caed's face as he gets to "swim"....bless his little heart! He just needs to get back to normal "little guy things" and it looks like he is. Bless your new friends....your family really appreciates them taking you under their wings! Tell Caed & Reagan if they were here they could get out a canoe and be floating down the river/streets! (We have had flooding today and tonight...
never seen so much water in Lubbock....they actually cancelled Lubbock Schools and day cares, and all the surrounding towns...Tech is still pending but probably will be cancelled by morning). I had taken Colby half-way home today (Ft Sumner) and I almost didn't get back to my house with all the rain and flooding...supposed to rain all night and in the morning and again tomorrow night....yikes! Hope labs are good tomorrow and ya'll have a restful "break" during the weekend. Praying for ya'll...Love you, MeMe

Anonymous said...

PRAISE GOD!! Caed sure looked like he was having a blast! Crazy dolphin....err, I mean boy! Tell dolphin boy he may be able to go swimming in our front yard soon thanks to Ike!!! Love yall!