We have one more night here at the hotel. It's a confusing story, but not sure we will get into the transplant suites tomorrow. You know how stuff like this goes.....just part of it, I guess. We were supposed to have received a fax here at the hotel from our social worker at the hospital (but have yet to see it now 2 days later, and no one is in the office this weekend). I will call first thing in the morning, and we will be heading back to the hospital for Caed's daily labs. (hopefully we can talk to someone there!)
The rest of our day went well. Caed's tube feedings are up to 70cc. tonight. (we increase by 5 ea. day) The IV fluids really seem to be helping keep his CO2 level up / normal. You can just tell he feels better. We will go in for labs in the morning, and then meet with the IRP team on Tues. morning. (his scope is scheduled for 1:30). Todd and Reagan are planning on flying out Wed. morning. Todd really wanted to be here for Caed's procedure on Tues. (he will be under full anesthesia) They will fly to Dallas and then we have a friend who works for Southwest (lives in Celina), and she will meet them at the airport and then fly with Reagan back to Lubbock. Thank you SO MUCH Kendall!! This is helping us out tremendously!!
Pray all goes well and we are allowed to transfer over to the suites tomorrow sometime!! It would really help if we were already over there and settled before Todd leaves.
HAPPY HAPPY BIRTHDAY HAYLEE!!!!! WE LOVE YOU SO MUCH!
Is it summer or fall? (I guess that all depends on
where you live) In Edna, Reagan could continue
wearing this dress at least til Thanksgiving!! ha!
4 comments:
Lori,
I am glad you got some needed rest! Will be praying for Caed and his procedure. Will also continue to pray for you! Thank you so much for sharing how you have really been feeling! Now we all know how to pray! Even more, I pray that you would feel God's peace and love and faithfullness especially in your times of suffering. Love you,
Mar
Here it is Monday morning and I am finally back on line. I have been without a computer since Wednesday and you all have been on my mind constantly. I felt lost not being able to check on you. Glad to see there have been some fun times along with the Dr. visits. Lori please know there are so many people praying for you and asking God for him to not only heal Caed but to continue to give you the strength you need to carry on. Will pray for the labs, scope and your lodging.
sheri Crabb
Give yourself a break, girl...God understands our fear and frustration. It is obvious from your blogs all these months, that you are trusting in God and know where your strength comes from...but, you are also facing "giants". We will be praying for God to sustain you and give you rest and peace.
Just a guess, but did J.G. buy that dress for Reagan's b-day? I love it-She bought the same one for Jamie for her's back in May. Ha! :) You know we love you and are continuing to pray for you all. Now if I can just convince J.G. to take a day off, we two just might have to come visit you in the near future! ;)
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