Mon. 9/15 - update

Back and forth....that about sums up our day. We had only reserved this hotel for a week b/c we thought by now the Leid (transplant center) would all be settled. So, we packed everything up (a lot of stuff!) and Todd loaded it up in the van. We drove to the hospital for Caed's lab draw and went over to the Leid to ask about the availability. They said they were completely full, but gave us the info on a hotel we could stay at while we waited. Guess what? It was the exact same hotel we've been at, and we even got the same exact room! ha! So, after all that loading....we turned around about 2 hrs. later and unloaded it all back into the same place. They told us the Leid gets pretty full during the weekends, but usually clears out through the week. So, hopefully we'll get a room over there soon. (we are however getting the "hospital rate" here at this hotel which is pretty cheap). Thank you God for that!

The rest of the day was spent running some errands, making lots of calls (as usual), and then we took the kids back out to the zoo to see one of their IMAX movies. It was one about the ocean. They loved it!

Caed has had to be on a liquid diet today because of the scope tomorrow. Not an easy thing with a 5 yr. old to begin with , but when you do not have a kitchen and are eating out EVERY meal....it's a whole other dilemma. We bought some of those "Soup at Hand" cans of chicken noodle soup. The restaurant here at the hotel knows all about Caed and our story and have been overly gracious this whole week. They had no problem heating the soup up for us and putting it in a bowl for him. We also had some jello and applesauce for him too. He sure has seemed hungry though. But, he's being a trooper and knows that the drs. just don't want him eating very much today.

We will go for our weekly clinic appt. in the morning at 10:00. This is where we sit down with the team of drs. and talk extensively about Caed, his progress, and "the plan." So far this week their main goal has been to get him "stabilized." His CO2 level has been great ever since he has had a bolus every day. You can sure tell a difference in him! We also know that the scope tomorrow is going to be a big day. Hopefully the drs. will be able to get a lot of info from it, and then begin formulating a plan. Please pray for the procedure itself. I don't know how Caed is going to react. In Lubbock, we figured out the best way to get through it. Caed would sit in my lap in a wheelchair and they would wheel both of us into the endoscopy room. Then, while he was still in my lap, they would insert the anesthesia into his line. He would literally "fall asleep" in my arms. Hard for Mommy.....easier for Caed! Please pray they allow us to do this. It is very difficult when he is being wheeled away as he is crying for us to "help" him.

The majority of our day will be spent at the hospital tomorrow. Pray for Reagan as this will be the first time she is there while he's having a procedure done. I know she will be worried. She will be "seeing" a lot tomorrow. Pray the Lord guards her eyes, ears, and mind.

Tomorrow will be our last day together. Todd and Reagan will fly out very early Wed. morning. It will be a hard day all around (for Caed's procedure and also Todd and Reagan preparing to leave). We will definitely need prayer for this as well.

Talked to my parents tonight. Caleb now has 2 new teeth on top! Can't wait to see him..........

Thank you all for your continued prayers. I just thought things were difficult this week. I think they're going to get much harder now. However, I know the Lord is My Provider!!



Styling the 3D glasses!!