Tues. 4/8 - update

Rejoice in the Lord always! Again, I say rejoice!...Be anxious for nothing, but in EVERYTHING by prayer and supplication, with thanksgiving, let your requests be made known to God; and the peace of God which surpasses all understanding, will guard your hearts and minds through Christ Jesus. (Philippians 4: 4, 6-7)


I feel like a broken record, but today was very similar to yesterday. We had a very good morning! Todd had to leave to fly home for a few days, and after he left, Caed and I went for a good long walk. He again was laughing, teasing, just being his normal self. We walked to the sky bridge playing games the whole way. He decided he needed his tennis shoes, so we headed ALL the way back. (he didn't mind a bit) When we got in the room, he got distracted by a toy car and wanted to sit down on the floor and play awhile. Then...he saw the sink, and decided he needed to play in the water again. By the time we headed out for our walk, his tummy started hurting a little so he wanted back in bed. Finally, it was nap time, so we closed the curtains, and turned out the lights, and we both feel asleep. He slept about 2 hrs., and when we woke up, the trouble began. He cried and cried with a tummy ache. (we're guessing it's still the 'contrast' trying to make it's way through...and causing cramps along the way) Later this evening, Aunt Megan brought Reagan, Xan, and Caleb to come play. Caed is officially "free and unhooked" from 6-9 each night. So, we thought bringing some playmates might be fun. However, he just wasn't feeling up to it tonight.

Drs. report: Caed does have a staff infection, although not certain exactly what kind. They took more cultures today. The other big news is that his feeding tube is clogged AGAIN! Since they fixed the last one, they have been inserting Sprite (carbonation) into the tube twice daily to help keep the line clear. Apparently that didn't work. Tonight when the nurse was trying to put it in, it wouldn't budge. Dr. Higgins (GI) called and told me sometimes when these tubes get messed up, they just continue to have problems. So, he gave several options, but feels the best thing to do is reinsert a whole new tube. SO....we will be heading down to endoscopy for the 4th time in the morning. They will have to put him totally under for this. Todd and I struggle with how many times he has been under anesthesia!! But, there's not much you can do. I hate the fact of him being wheeled BACK down there. It just seems like it's one thing after another! But, like my dad and I were talking this evening, when you compare the positive moments to the bad ones this past week...the positives definitely outweigh the negative ones. However, when you've had such good days, the bad ones just seem to stand out more. Please pray for Caed in the morning. He will most certainly experience GREAT anxiety! Pray for Todd as he is in Celina now. He is really struggling being so far away with the new development. Pray for me to REST in the Lord! My heart aches so much right now. But like the verse says, "Rejoice in the Lord ALWAYS!!" We are to thank God and rejoice for everything going on. He has all of this worked out, and we KNOW that Caed is (and will be in the future) being used mightily for His glory. Thank you God that you chose my precious little one to be Your vessel!!!!! Teach us through these times and refine our hearts that we may bring honor to Your Name!!!

A few pictures from our good morning:

Playin' possum



Enjoying being out of bed

Caed and his best friend "Roley Poley"
(they are inseparable!)