Thurs. 4/3 - update

Caed began throwing up at midnight last night. (however...I never saw any pizza!) He continued this most of the night and day today. We began seeing bile again. Also the amount was QUITE a bit!!! (more than he's ever done before). I won't go into all the confusing details, but we concluded that his tube feeding amount might be causing it. (too high) So, the GI dr. decided to lower it back to 15cc/hr. and leave it there for 2-3 days and see if we notice a change. They said 15 may just be his limit. (he had told me yesterday that the goal would be 60!) Anyway, today was not good for Caed. He just felt horrible. Finally, after they changed the volume back, we saw the throwing up lessen. (only twice) Hopefully, it has made some difference. THEN....tonight we started having problems with the feeding pump. After a few hours of messing with it and even changing pumps, they realized his tube is clogged. (or it is up against the intestine ????) So, the plan is to do an x-ray in the morning and then probably have to reinsert a whole new tube. It is getting SO frustrating! It just seems like if it's not one thing, it's another. I hate what he is going to have to go through tomorrow. May not seem like much, but just transporting him to some far off room in the hospital for all the various procedures he's had, scares him so badly. There just seldom is a day that he is not being messed with (more than the normal stuff). We obviously want them to "fix" whatever problem has arisen, and in doing so hopefully discover some new helpful information (whether through an x-ray or another scope, etc....). However, our main prayer request tonight is just simply for Caed! Not necessarily his body or any of the medical problems he's having, but specifically for his spirit. You can see HOW miserable, sad, angry, frustrated, etc....he is. Those of you who really know Caed know this is completely opposite of his true personality. We call him the clown at our house. He's so funny and always making everyone laugh with his actions, expressions, speech, whatever! It's really hard not seeing that same little boy anymore. Yes, he has his moments or days that are good, but they don't last very long, and he's back to being sad again. We know he is SO tired of being here and hearing all the "pep talks" from everyone all day. To this little 4 year old, he can't possibly comprehend that this is just "going to take time." Everyday seems to get longer and longer. Please pray that God would fill him with JOY! (a happiness not dependent on good circumstances) Pray for Todd and I and others that are with him each day to be positive as well. Sometimes, at 3am....it's very difficult. We do have SO much to be thankful for and like I always say, "things can always be worse." Pray for the Lord to bring all those positive, good things to our mind often! We know satan is attacking with the fiery darts of weariness and discouragement.

...Weeping may endure for a night, but joy comes in the morning. Psalm 30:5

...but REJOICE to the extent that you partake of Christ's sufferings, that when His glory is revealed, you may also be glad with exceeding JOY. 1 Peter 4:13