Wednesday 3/12 - update

Well...back on that roller coaster!! Today wasn't a BAD day, but it definitely wasn't as good as yesterday. The drs. decided to pull the NG tube out of his nose this morning. We had mixed feelings about it. On one hand, it's one less thing he's hooked up to, but they had tried to pull it several days ago and his tummy wasn't quite ready and they had to reinsert it. So...we're just praying this timing is better and his body does ok without it. He did have several episodes of throwing up, but I'm not sure it would have been different if the tube was still there. Our "high" moment was when Reagan came to visit. Todd and I had decided that when they removed the nose tube, Reagan could come see him. (we were afraid it would scare her too much) He is of course hooked up to lots of other things, but since the port is coming from his chest it's easily covered up. They were SO excited to see one another. They truly are friends, and have missed each other terribly. As you can see from the pictures, it was the highlight of the day!!! However, it was short lived. He seemed to struggle a lot more today with pain and anxiety. If you are a hospital employee (of ANY kind....even the housekeeper), you will surely cause this little boy's blood pressure to rise when you open the door. He's done ok so far (as much as you would expect from a 4 yr. old), but for some reason today was not a good day with the nurses and drs. I'm sure he's getting real tired of being poked and looked at all day from SO many different faces. His surgeon said his red blood cell count was a little low, so they will do a transfusion tomorrow. Other than that, nothing new from them. We did 4 walks today, and the last one was done with very little crying. (we kinda bribed him that if he didn't fuss, he wouldn't have to go very far) We're going to have to come up with a new plan tomorrow b/c the goal is to increase the distance each day. ha! He also rode in a red wagon down the hall to the playroom. We didn't go in, but he just got a good look at where he's going to play REAL SOON! Thanks for the continued prayers!!!! Keep them coming!