Sat. 3/15 - Update

Today was a pretty rough day. Caed was in a lot of pain! We started Demoral again and also some med for anxiety. He slept on and off from 2:00 - 10:00 pm. I know his little body needs the rest. He hasn't been getting any the last several days/nights. We really were concerned today just b/c it seems like he isn't getting any better. However, after talking with the dr., we are reminded that he may be at the peak of the pain (as the bowels are waking up more). She wants to do a cat-scan tomorrow to take another good look. They finished the last of the x-ray series (that they started yesterday) this afternoon. What they determined was that his bowels are extremely sluggish. His dr. told us he is progressing more than she thought he would be at this point, but yet that his bowels are still very sick. It's just going to take time. She said he is also experiencing a classic case of "hospitalitis." This child is extremely sick of being here and basically being bed-ridden the last 14 days!! The smiles that we had seen and loved are now gone. If he is not hurting in pain, he is whimpering w/ sadness. Pray not only for his body, but also spirit as they are both very weary.