Saturday Update

Here is the latest:
He's had a bad 48 hrs. filled w/ lots of pain...only sleeping 15-20 min. at a time. Todd and I have been rotating staying up with him during the nights. It's been an exhausting several days. They began getting him up out of bed and to a recliner on Thurs. Again, very painful and he just cries. But, we know that it is part of the healing process for him. (as much as we hate it) Just talked to Todd and sounds like they are trying to be a little more aggressive today: they just took the NG tube out (going down nose to stomach to continually pump out "stuff", took out catheter (which they tried Thurs. also but had to reinsert b/c he couldn't go to the bathroom by himself), and also are moving IV's, etc....back to arms (has been a port going through his groin) This will hopefully allow him to be more mobile. Todd said he has thrown up several times today b/c the NG tube was taken out. It was doing all the work for him, so now he'll have to get all that junk up by himeslf. The plan right now is to try to move him to a room tonight!!! Thank you God!! They have just given him some "sleep med" so they can take the port out. Not sure how much of that he will feel.He still has such a long road ahead of him, but we are SO thankful for the progress. He is still in lots and lots of pain, so pray that the Lord will relieve some of that and he will finally be able to get some much needed rest! He is such a trooper. The drs. and nurses have commented over and over how brave he is. (which has kinda been a downfall, b/c he won't admit when he is hurting)

Thank you ALL for EVERYTHING you have done this past week! We truly have been overwhelmed!!! It has been a picture to us of how the Lord is taking care of us through the BODY OF CHRIST!!! You all have been the vessels He has used. You will NEVER know what it has meant!! The surgeon who has been with Caed from the get-go told us a few nights ago that she truly thought he was going to die when she saw him Sat. night! As a parent you never want to hear those words, but God is using them to remind us of what a miracle it has been (and continues to be). God has SUCH BIG plans for Caed in the future and we know that this is all for HIS glory!Again, thank you for all the prayers /cards/ gifts, etc.... It means more than you'll ever know! Right now please continue to pray for his bowels to "wake up" and start healing (he lost about 60-70% of his small intestine and a sm. part of large), also for pain to be minimal, for his spirit to get better (he's a very sad little boy), and also for those of us living in the PICU (has been physically and emotionally very draining). We love you all!!!!!!!!!Lori