Our days last week were....tough. Caed was still in a great deal of pain (unless heavily medicated), and just to see his frail hunched body was heart wrenching. This weekend we began to see small improvements, and then finally today....wow!
Caed went to school (all-day) for the first time since his surgery. I was nervous based on some of our attempted days at school last week. He was basically miserable. Today was different. He went through the whole day solely on Tylenol or Motrin. HUGE praise! It took no time at all for the 'old Caed' to come back. A little slower. Still a bit hunched over. But, his crazy personality was finally seen again.
Caed's main incision is looking better. It's closing nicely (minus the appearance of a couple of stitches). We're not sure what to think of them. Our experience with little blue mystery stitches has not been great. But, I'm trying desperately to remain positive and not let Mommy's worrisome heart get in the way. The G-tube hole is also closing well. No worries there.
We have had some dark days (and nights) lately. Tough going from 'happy 'n healthy' to 'sad 'n painful.' You begin to forget what normal is like. When your only worry of the day is what to cook for dinner. You have taken health for granted...even though it was something you swore you would never do again. But, today God shed some beautiful light onto this cloudy, dreary, West Texas day.
Lots of smiles. Lots of laughter filled my day today because of this boy. To finally see the relief was unexplainable. The first thing Reagan asked me after school was, "How did Caed do?" When I told her REALLY WELL....she began to laugh. I could tell her heart was suddenly lifted too.
I can't exhale completely...just yet. Not until I see a closed up tummy.
But, we're on our way.
And in the meantime, I have trust in God's promise that Caed is fearfully and wonderfully made. All of his "shortcomings" have been perfectly designed by the God of the universe. Simply put. There is peace.
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