....that basically sums up Caed's day today. He has not been himself and has cried at least 50% of the time. Just walking a few feet does him in. He can barely make it. He was moving better the day of and after surgery than he is currently. We are guessing since they have begun "messing" with his incision (dressing changes), that is the main cause. (and also because he had some high powered drugs in his system helping out after surgery that we no longer have access to)
Speaking of his incisions, today was a good day for Todd and I. We had hit an unexpected low yesterday after the 1st 2 changes. There was just so much blood. Come to find out, that was not normal. They were concerned with him bleeding out....so this morning Mercer's PA wanted to take a better look herself. We all held our breath as the gauze was pulled out. Wow! Once again, shock hit Todd and I, but this time in a positive way. The main difference was the amount of blood. Don't hear me wrong, there is still something very wrong seeing inside your little boy (2 places), however...we were able to look at it simply from a wound standpoint, and it looked so much better. Thank you for your prayers specifically in regards to the incision.
Our spirits were immediately lifted, and we were finally able to exhale. However the pain issue has now got us feeling deflated again. I guess we were expecting the same Caed post-op from this summer's gallbladder removal. He bounced back from that so much quicker. He is currently on the max dose of pain med.....but we are eager to see some improvement so we can begin the weaning process.
Despite the pain issue, we were discharged to the Lied Transplant Center (literally our second home), and our plan is to stay tomorrow and do nothing but rest up. We fly out Sun at noon, and spending all day in airports (post-op) can be really hard. PLEASE begin to pray specifically that Caed can have a much improved day tomorrow (pain control), and be able to "comfortably" get home on Sunday.
I look at him today and just want to cry right along side him. Tough reminders of painful days....not too long ago resurface. I received a text from my dad with a simple lyric from an old song: "He didn't bring us this far....to leave us." I completely agree and needed to be reminded of just how far Caed has come in these last 4 years. I know he will get through this too!
1 comment:
Your prayers for Sunday are answered with my thoughts of your son on Monday, with his bed, his room, his family, his friends, and all other things familiar to him close & surrounding him. I can only imagine how much better you will all feel at that point... (Hale Hughes)
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