One year ago today.....-the drs. believed it was crucial for Caed's emotional and mental well-being to allow him a 4 hr. pass out of the hospital. (after being there 59 consecutive days)
-Caed's tube feeds were only at 14 ml/hr (approx. 3 tsp.) continuously.
-He walked in pain
-His g-tube drained continuously to give his stomach a break (from throwing up so much)
-He could not eat by mouth, but only sipped on small amounts of water
-He did not talk much, and had lost his "spirited" personality
-Caed was suffering emotionally from Post Traumatic Stress
Today........
-Caed is home
-his tube feeds are at 120 ml/hr for only 16 hrs a day
-He can do FLIPS on the trampoline pain free
-His g-tube remains closed when not on feeds
-He can eat anything (within reason of his sbs diet)
-He talks and laughs continuously
-Caed shows NO signs of PTS
The LORD is my strength and my shield; my heart trusts in Him, and I am helped. My heart LEAPS FOR JOY and I will give thanks to Him in song. (Psalm 28:7)
Taste and see that the LORD is good....... (Psalm 34:8)
20 comments:
You've got a beautiful family Lori! Truly a blessing!
God answers prayers...in His time. So thankful for tears of joy when I read your blog now.
Praise God! Caed has come SO far! And your whole family is together! God is GOOD!
And those kids are just precious! Great picture of the flip!
Hugs and kisses
Love
Tina Coleman
thank you Jesus for bringing caed this far! you truely are an amazing God!!!! God continue bless Caed and all the fam!
we love you guys!!!!
Again, we are misty eyed in NE!! A year ago, you could never have imagined where Caed would be today. We praise God for his faithfulness and goodness. We are also so thankful for you all and the ways you have blessed us here!! Just love you guys so much!! The new pics of the kids are tremendous!
Carol and Cork
Yeah God! HIS mercies are new every single morning.
Love you all!
Megan
AWESOME!! AWESOME!! AWESOME!!
I have followed Caed's story from the beginning and just continue to give thanks to GOD for his work in Caed's life. Also for his faithfulness to your family and your willingness to trust in his goodness.
You will never know the blessing you have been to so many thru your blog.
God bless your family
Hi. My name is Tracy Fischer. I left a message a few weeks ago. I am so happy to hear of the great healing in Caed over the last year. It is amazing to us when we step back and look at the progress in our Caleb from year to year. As you said, all the praise goes to God. In your post you wrote about how Caed can eat most anything but there are limits due to the SBS. We haven't been brave enough to give Caleb foods with table sugar or even fruits. When we've tried bananas his output went way up. Just wondering about Caed's diet. Caleb pretty much eats only meats, bread, & veggies.
Caleb has a carepage. The name is calebfischer.
I am so thankful that you and your family are doing so well. We will continue to keep you all in our prayers.
Your Sister in Christ,
Bridget R.
Truly amazing! God really does answer prayers! Love yall,
Mar
WHAT AN AMAZING GOD! REMEMBERING ALONG WITH YOU AND SO THANKFUL FOR HOW FAR OUR CAED HAS COME....WHAT WONDERFUL PICTURES OF THE FLIPS! AND THE "CORN ON A STICK" AS MACY PUTS IT! MISSING YOU...HUGS, MEME
The Lord is good and worthy of praise! Praise Him!
So wonderful to read. Caed is very blessed to have such awesome parents to take care of him. Well done.
Praise God for his conintued faithfullness to provide health to Caed and togetherness for your family! still praying! love you all! bridgette
What a contrast! Praise the Lord!
This brings tears to my eyes. And I know how hard it must have been for you and your family at that time as well. God is faithful. He may not work on our time, but His time is always perfect. Now you have a joyous, handsome little boy, PRAISE GOD!!!!
The verse that pulled me through:
"He rescued me because he delighted in me." Psalm 18: 19b
God rescued little Caed because He delights in him. Isn't it amazing!!!!! Caed has a calling and a purpose, and I can't wait to watch that unfold.
God Bless!
Heather Cleckler
fellow SBS mom!
That is wonderful!!!!
What a blessing to be able to look back and see the progress, the healing and the blessings! What else can you say except "Yea God!" We love you guys!
amy o
I'm surprised the picture wasn't of YOU doing a flip on the trampoline!
Thank you for sharing Caed with all of us!
Ross Ann
We celebrate with you and praise God for his faithfullness!
The Davis Fam
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