I went into today thinking it was going to be "quick and easy" (at least 4 hours). The idea of the small bowel series is to inject the barium into his stomach via g-tube, and then take x-rays every 1/2 hour to monitor how it flows through. At one point (back when Caed was at his worst), it would sometimes take almost 24 hrs! But, the last one we had (Oct), it only took 4. So, I just naturally thought it would be the same again today. Boy was I wrong. 7 hours......!!! That is a long time for anyone, but especially a 5 yr. old. He was actually their 1st patient of the day.....and then became almost their last. Caed was supposed to be NPO for this, so...he went almost 20 hrs. without eating. Finally, even though the test was not over, they let us go up to the cafeteria around 3:00. Todd and I of course did not eat either because we didn't want him seeing us, so we were quite famished as well. It wasn't just the long day in radiology that made it such a hard day. It was also very emotional. There were several dilated loops (which is common for sbs), and then at one point the radiologist began talking about a certain area of Caed's bowel that looked a little constricted. It was very small and thin. My heart just sunk. Oh Lord....
please no!!!! I can't continue going through this! For several hours after that.....I just felt sick to my stomach. I was on a high yesterday after hearing all the good reports from the drs, and now this. Why was it taking SO long to go through this time? What was happening? Is that little section of bowel a potential problem?
We still don't know anything. We will fly back home in the morning, and then be in contact with the drs. as soon as the biopsies and other lab results come back. I am exhausted physically and emotionally. This trip has literally worn me out!
Thank you for continuing to pray for Caed!!!
7 hours!!!!! Poor little guy!
Caed's bowel
7 hours!!!!! Poor little guy!
Caed's bowel
6 comments:
So sorry for how long the day lasted. I know you are spent...he looks so good! Hope you can rest in all the good news you have gotten. Praying, praying, praying!
Praying for good results & safe trip home. Know you miss Reagan & Caleb, but they are in good hands. When you leave Nebraska, don't forget your cell phone & Debit card????? ha....It will be a story that will be funny in the future.....
Days and tests in the hospital never go the way we hope--always a problem somewhere. Sorry Caed had to endure such a long test and not be able to eat and y'all also. And, you didn't get to go to the zoo either. Bummer-- What about the bone scan? Hopefully, that didn't take too long. Praying for a quick flight home with no problems. Talk to y'all tomorrow night. Love-Grammy
Would you believe we are finally reading your blog over the last 4 days this morning at 12:20a.m.?! WOW! Can't believe all that you have been through! We got back to Bellevue late Monday night from Wheaton and then with a full schedule Tues, work Wed and our computer in the shop until Wed, we just didn't know, but probably couldn't have helped you much either by now. Thankfully, God is always present. Will be praying for your return to the great state of Texas and results of tests.
Love you all LOTS!!
Carol for us both
Praying....
Mar
Hang in there Lori/Todd--When all else fails look at that beautiful smile on Caed's face! What an angel! Still praying for a good outcome on the tests.
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