A Broken Record

I'm beginning to feel like we need to push the Repeat button on Caed's incision issues.

Frustration.

Confusion.

Heartbreak.

These are a few of my thoughts as we left Dr. G's office this afternoon. She is not convinced that his ab wound is "healing." So much so, she went and got her associate surgeon to come see for himself.....the mystery.

NE told us when we left that the G-tube site would take much longer to close up than the ab one. Up to a month. Well, here we are days away from 1 month.....g-site is closed. The other is not. LONG story short, Dr. G and Dr. R feel that possibly Caed is allergic to a specific type of stitch used on both June and Feb. surgeries. All details from those procedures will be faxed from UNMC this week, and Dr. G will discuss specifics with Dr. M. Then....we go from there. Surgery #7 is a strong possibility.

This is the reality of having 2 separate hospitals/doctors (900 miles apart) working on your child. 99% of all sbs'ers are in this same boat. Very few people have the ability to MOVE to the city/state in which their specialist is located, and/or travel back and forth on a whim. We are no different. Therefore you attempt as best you can to work together as a team. Very difficult, but completely possible. We know beyond a shadow of a doubt both these teams LOVE Caed. They both want to see him healed. We will get there.....together.

Dr. G commented many times today how she can't believe this is what we are dealing with! After EVERYTHING Caed has been through. Remembering just HOW SICK he was....and for almost an entire year....we are still struggling with a "stitch problem."

Todd and I were very deflated after the appointment. Honestly it was the LAST thing I expected to hear going into it. ("another possible surgery needed") However, after I spilled my heart, Todd simply said, "It could always be worse." Hey! That was supposed to be MY line!

So, tonight we are thankful. Caed is tucked warm in his bed with his little sidekick just beneath him. No medication was needed. No feeding pump was connected or TPN hung. Just the sounds of two giggling superheroes echoing down the hallway. We will take this day by day....and desperately not get ahead of ourselves or allow our minds to drift to dangerous places.

Our main prayer request right now is for clear communication to take place between NE and TX this week, and for an agreed solution to be made.

And of course......healing, once and for all.