This has been Caed most of the day. My first instinct was that he's just tired. But, then after getting word from NE about his labs this week......I don't know. (I guess you never really know) They said he was on the "dry side"............and we really needed to push his ORS (drink). We may need to give him an extra bolus of fluids. I guess we just need to watch him. Dehydration is something very, very common with short gut, but especially this time of the year (and in TEXAS!!!) They also want him to get blood drawn again next week just to watch those levels. They want to add a new lab this time. It's an IBD serology (Inflammatory Bowel Disease). This is a good indicator of predicting colitis in sbs patients. They don't feel Caed is at risk for this right now, but just want to be sure.
He has also been struggling with those darn legs pains again the last couple of weeks. We just keep the Tylenol on hand, and I have been adding it each evening to our nightly med routine. Hopefully they are just growing pains!!
3 comments:
Hey Lori
We hate to hear anything that could upset Caed's progress. It has been so good reading all the great progress he has been making. As hot as it has been lately, I'm sure it is just related to the heat. I know just mowing the lawn get's me worn out and dry. We will be keeping Caed and your family in our continued prayers.
We are headed to Omaha again in late July or early August. Tell Caed that Cooper said Hi, and he can't wait to play with him again.
We Love you guys.
J. & Tana
The battle of the fluids!! It is so hard for these poor kids to take as much fluid as they need. Devin has a hard time with this too...
Caed is in our thoughts and prayers.. Hopefully with a little extra fluid he will perk right up!!
Colleen
www.cotafordevinm.com
Popping up some prayers for a quick resolution and a return to normal. Guess it is a reminder of continuing care, as you well know. Thanks for the posts.
Love to you all,
Carol
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