We are back here in Nebraska, and Caed was so looking forward to seeing snow and going "sledding!" ha! Our nurse coordinator had been telling us of all the snow they had received, but apparently it decided to go away when we came. However....let's just say for these 2 Texans....the snow (I mean, "ice piles") along the sides of the roads and under the shade are good enough for us! We arrived here Friday night and have only been able to get out twice. Yesterday we had to stay in because of icy roads. It has definitely been a harder stay this go round: 1) cold weather 2) no big sister to play with! Fortunately, this stay will be significantly shorter than our previous (5 days compared to 11 weeks!) It has actually been fun being back and seeing familiar faces. We are staying here at the Lied again.....different floor....different room, and yet we feel as though we are back "home." Because of the exact same floor plans, it seems like we are in the same room. When we first got here, Caed immediately ran to his "toy drawer" and was a little shocked to see all his toys had disappeared. ha!
Today Caed had to endure the dreaded blood draw. This one was a little worse than the previous weeks. They needed "lots of blood" for some extensive testing. Tomorrow we will meet with the IRP team for a checkup. When we left here the end of Nov., Caed's tube feeds were at 100 ml/hr. The goal was to get him up to 120 ml by this appt. We are there! However, his output has doubled in the last week, and they are now completely liquid in form. I feel like we have taken a big step backward. I guess that's something we will discuss tomorrow. Outwardly, however...Caed is still the same. He continues to make everyone laugh and is a joy to be around. Thank you Lord for this!! We plan on flying back to Lubbock Wed., will get Reagan & Caleb (and a load or two), and start the drive home this weekend. I know Todd is sure ready to see us! He will have been alone (again) for 2 weeks. Hopefully, after this trip, we can finally settle down and just be home (and together!!).
Thank you all for your continued prayers and words of encouragement. They mean more than you'll ever know.
Caed at his favorite park here in Omaha. Looks like snow, huh? Well, the picture is deceiving. It is solid ICE!!!!!!!!!
**found out today that my Granny's husband (step-grandad) just passed away. It's only been a month since her death. Please just keep all the family in your prayers.
6 comments:
LORI...SO SORRY TO HEAR ABOUT GWEN'S HUSBAND..SEEMS THAT HAPPENS A LOT IN OLDER COUPLES.SO GLAD TO GET THE POST TODAY. WAS AFRAID THE 2008 WAS SAYING BYE AND WAS SAD. GOOD LUCK IN NEB...LOVE AND PRAYERS...SHARON WYLIE..LUBBOCK
Praying for you guys! Be safe! Happy New Year!
Praying for your medical discussion tomorrow! Looking forward to seeing you or talking to you soon! Love ya,
Mar
Our apologies to Caed for no snow! WE, of course, are delighted that the weather is as good as it is! Hope to see you later today. Call when you can.
Love,
Carol
Praying for each of you. Showers of His greatest blessings to each of you. It's "funny" to get a post from Omaha again!
In His great love,
Carolyn O'Cain
Todd and Lori,
What a journey you have been on! Our Oldest son Jack had hirschsprung's disease (diagnosed at 5 months old) and while we didn't endure near the trauma and heartache you have, we can relate to ALOT of what you've gone through. He had "short segment" so only 3 inches of his colon was removed, before he had a colostomy and an illiostomy. Now he is a healthy 10 year old boy and only by the scars would you know anything had happened to him. God was so faithful to heal Jack and I believe he will continue to be faithful in Caed's healing as well. Now that we know about him, we will be praying for all of you! I've thought of you so much over the years and you were impressed on my heart SO much recently! How amazing that God calls on us to pray even when we don't know why! Please just know we will keep praying for you and your family! Much Love, Heather Cathey
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