CO2.......

.....why do like to torment us so?

Well....results came back from Caed's latest blood draw. The main thing we found out was his CO2 was low again! One of our nurse coord asks me lots of questions and then was going to pass it along to the docs. Was sure wishing I would have heard back today, but Tues. is their IRP outpatient clinic (BUSY!!!!) day. Hopefully, will learn more tomorrow. May just be a simple solution like adding sodium bicarb to his ORS drink. (since he is no longer getting it through his feeds)

Caed has been off ALL feeds for 10 days now!! Won't go into all the crazy details which led to it, but basically after 3 "free" nights, we decided to continue on and just see how his body handled it. He was at 600 mls....and our goal was 500.....so, we felt we weren't too far off. For the most part, Caed has been his normal self. But, we began to notice (just days into our little experiment) that he was MUCH more irritable, whiny, frustrated, and tired. Now, all kids (and us adults too!) go through spouts of this, but the coincidence of it all happening at the same time made us question whether it was cause and effect. Still not certain.

We will probably go to either weekly or bi-monthly labs for awhile to monitor his CO2 as well as everything else because of the change. We are optimistic it will someday level itself out without meds, etc.... , but sometimes reality sets in causing us to remember he still lives with a chronic condition. Something that is SO VERY easy to forget because of how "normal" Caed acts. However, we PRAISE GOD for that!

Will update again after I talk with NE further. Thanks for the prayers.......

*we are enjoying our Spring Break in bi-polar Lubbock.....snowed yesterday....65 and sunny today! Gotta love it!!!