Easter weekend

Why do you look for the living among the dead? He is not here; HE HAS RISEN!



Hope you all had a very blessed Easter weekend. The kids had a great time decorating, hunting, and playing with eggs on Sat. afternoon....and then going to an "egg hunt at night." Todd and I didn't go (instead went to see the Mavs play), but we were told everyone had a great time. They all had flashlights and off they went to find their eggs in the dark!!! Sunday morning was a wonderful time of worship as we celebrated our risen Savior!



Now, for a Caed update - the results from his last test came back today. His labs look "ok." Not GREAT....but ok. His white blood cell count is dropping, which is good, but he is still a little on the dry side. Caed went 3 days pain -free. Then, in the middle of the night last night....we had 2 short spells. They didn't last long, but made for a very tiring morning. The thought is he might have some kind of GI bug that has hit him hard (going on week #4). I don't know. None of it makes sense to me......when we look back at when it all started and how the pain-spells transpired. They began hitting him right after he would eat. 5-7 a day. Then, they became much less frequent but more severe in pain. ER visit. Lately....he will be just fine, outside playing or sitting watching tv or at school or sleeping.....and all of a sudden one hits. There just doesn't seem to be any pattern that I can see. I'm still not sold on it just being a bug, but for now.....we'll keep our eye on him. It may actually be a combination of several things.



The plan as of now is to keep doing what we are doing. He will remain at 500ml of formula for the months of April and possibly May. The risk of dehydration during the spring and summer months here in Texas can be high, so we really need to be careful. Also because of this latest setback, it's looking like we may not get rid of the g-tube in June as planned. We'll just have to wait and see. NE is feeling as though we may need to wait til the end of summer to be on the safe side. (again....for risk of dehydration) As much as we are wanting that thing GONE.....we also don't want to remove it too soon. I know Caed is going to be so disappointed. He talks about "his tube being gone the next time we go to NE" all the time. Which is probably my fault! But it'll be ok. We can talk him through it, and let him know the reasons why we might have to wait. He's a big boy......








playing Egg Toss after they found all the eggs. Our street and driveway were a mess.....but made the birds very happy!!


Some pics from our night with the Dallas Mavericks.....fun!!! We had GREAT seats!

Dirk Nowitzki



Kevin Durant and Jason Kidd