MIC.....KEY

This all familiar word can be heard on a daily basis in our home. For two reasons:



First off......Caed's Make-a-Wish Disney trip is in "t minus 14 days!" We fly out on Sept. 12. We all are quite gitty about it, and can't believe it's finally here. Caed and Reagan want me to go online daily and show them pictures of Disney World. They start laughing.....jumping up and down.....unable to contain their enthusiasm. I will admit, even at the ripe old age of 36......my heart as well is bursting with excitement for this much needed adventure.

Our Make-a-Wish coordinator contacted me several weeks ago regarding a "send-off party" they want to throw for Caed. They wanted us to invite our families and a few of Caed's closest friends. The location was his choice, and he chose the Wiggly Play Center in Frisco. Caed has loved the Wiggles ever since he was a toddler, so when we moved here 3 yrs. ago and discovered this wonderful play land that is dedicated to big red cars, a dinosaur named Dorothy, and 4 of the "coolest" dancing dads we know......well, Caed was hooked. Although we were a bit surprised by this choice thinking he might have outgrown them. Apparently not.....and whatever makes him happy.....we'll do! This party is set for next Sat.



However the second reason "Mic Key" is being talked about so much has nothing to do with the happy little mouse that wears white gloves. Caed has been complaining of his button hurting the last couple of days. He has been scratching at it quite a bit too. So far (the past 16 mos) we have been VERY fortunate with his button. At every clinic visit they always ask if there is any pain or irritation with it.......never! So, for this to be happening for the first time now, we count as a huge blessing. Our nurse coordinator in NE said we first need to try a longer mic-key. She said the balloon might be migrating into the tract, therefore causing pain and irritation. Hopefully this will be a simple, quick fix. (although it will require Mommy to do the dreaded changing out of tubes.......ugghhhh!) If that doesn't work, she said he may have an infection and we'll need to get on an antibiotic. Our home health co. said we needed a dr.'s order to get a bigger button. So, we probably won't get anything accomplished until Tues. or Wed. (slightly frustrating) Caed will be ok, but I hate knowing he isn't feeling well. He has played outside a little today, but continues to come in ever so often to let us know "it hurts." All I know to do right now is give some Tylenol and let him rest. His site is leaky, red, and irritated. I can just tell by looking at it, something isn't right.

Sometimes just wish I could blink my eyes and make it all go away.


one day.......