Caed has been suffering with leg pains (primarily) the past 2-3 weeks. Todd and I came to the conclusion that it was probably just "growing pains." We have heard stories before from other boys in particular that had similar struggles around this age.
However....because of Caed's condition, we just can't always assume the "norm." NE informed us after this last month's lab draws that "he is on the dry side." (dehydration) Not enough that the drs. feel he needs extra IV fluids right now, but we just need to watch him. Now....after several nights waking up crying in pain, we thought maybe it could just be leg cramps (from dehydration).
NE feels it could be simple "growing pains" too, but would rather error on the side of caution. They are worried about his hydration and also his potassium level. They want Caed to have a DEXA scan (bone scan) because Short Gut patients tend to "steal" calcium from their bones to supplement their blood levels.
So.....it could be something.....or it could be nothing (growing pains). The last several nights have just been hard watching him cry in pain. (seems to be getting worse each night) It will never be the same for us. Our minds always "go there" and the memories of many months of him in severe pain are still haunting. Watching your child suffer is one of the hardest things a parent could ever go through (as SO many of you know). We're just praying nothing more serious is wrong. I guess this is simply another reminder for us that Caed's condition is a chronic one.........it will last a lifetime. Sure, we pray that just as he is doing now, he can live as "normally" as possible, and yet recognize we will always be dealing with the SBS.
Reagan and I had a wonderful evening last night. We met Bergan and Angie at the American Girl Store in Dallas for Bergan's birthday. The girls had so much fun!!!! Bergan is staying with us a couple of days, and Reagan is thrilled that after all this time....Bergan finally gets to be at HER house! We will take Bergan back to Idalou tomorrow and stay a few days there in Idalou/Lubbock for the remainder of Spring Break.
Happy 9th Birthday Bergan!!
"Tory" and "Mia" at the salon.
Sweet memories
5 comments:
Check in on your updates,praying for this to be growing pains, nothing more. We had aloways rather it be us than our kiddos.Praying for Blessed Assurance.From Idalou!!
We're just checking in on you from NE! It's in the 70s today, so J&K have been enjoying life! Please know that you are in our thoughts and prayers. We are praying for Caed's legs.
Thank you for the photos. It's good to "see" you all again.
Oppermans
I have enjoyed the pics of your sweet family. It is so good to see them in daily activities and haveing a good time.
Still praying for Caed's problems but trust the Lord will take care of him. He is such a brave little guy.
I'll pray for Caed and that you can get testing done soon and have the answers. In the meantime, I pray he gets better. Audra
I'm continually praying for you all. Love, Lyndi
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