Well, this is a first for us...spending time in NE during the hot summer. We were blown away by the humidity. Definitely didn't expect that. We decided to combine a little family "vacation" with Caed's dr. appts. this time, since Reagan has been begging us to let her come back. And the last time Caleb was here, he was only 6 mo. old.
The testing will start this week. Caed has been doing WONDERFUL (ever since we got back on all feeds and meds in March)! However, currently he is only on 400ml (120/hr) for 6 nights. We allow him to have "free Fridays" where he can go to bed tube free! I think in the intestinal rehab world, that is virtually nothing. So, we are very curious to hear what Dr. M has to say. We are, however expecting Caed to stay on tube feeds through the summer at least (due to the hot summers in Texas and the high probability of dehydration). But....will possibly be tube FREE by Sept!
So far, we have had a WONDERFUL time here in NE. So good, in fact...it's deserving of its very own post! Many of you have prayed for Aria and her parents Anita & Hamish from New Zealand. Well, yesterday after a very long year, we finally met FACE to FACE!! I will write about it in detail in a few days.....
Thanks for your prayers. So far, so good. Tomorrow Caed will have what he grudgingly likes to call the "all day tummy pictures." It's a small bowel series, and should last 1-2 hours. For Caed, we generally are the first radiology patient of the day and then are the last to leave (6-7 hr. x ray). It's not painful at all (just a little discomfort for Caed as the barium makes its way through), but just VERY LONG and boring for a nearly 7 yr. old boy. Please just pray specifically for this test. It always is very nerve racking for Todd and I. Outwardly Caed is a 100% normal little boy. This test always reminds us otherwise. Just pray for no dilated loops in the bowel or any other areas that look "suspicious."
Will post tomorrow after we speak with the drs.
4 comments:
Praying for you to have a good vacation time! Praying everything goes smoothly for Caed! I love the hair cut and the missing teeth! So cute! Oh, and I love that you get to meet Anita, Hamish, Aria and Asher! What fun! And to get to see Carol and Cordell again! Have a great time!
Love you guys,
Tina
So good to see you all again! And to see you meet Anita, Hamish and Asher. What fun! Praising God that we could be a part of this all! Love and prayers for the procedure tomorrow!
Carol
Hey "Hawk"...will be praying for you tomorrow and that your "tummy pictures" turn out perfect...love you buddy!!! Grammy
So good for the mini vacation.Getting to meet Aria's family and see old Nebraska friends. Much more pleasant that last time there.Will be praying for good tests and a nice time for all.
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